on 21-02-2017 07:07 PM
I had some news last week that I have a lesion in my brain - indicative that I have had a transischaemic attack at some point in the past (a mini-stroke). This actually could be linked with a big attack of vertigo I had in December 2015, shortly after I went fulltime with the business!
My customers know about the vertigo - it knocked me sideways for months. However, I am still unable to do continued full days, and this news could explain it! I was hoping to complete kickstarter pledges last week but then I got MRI results for something else which showed this. I've been quiet now after sending out an update saying it was finally time, but I feel a responsibility to my customers to explain my health to them.
I don't see it as a bad thing at all. In fact I think it's very positive that as a brain damaged individual (in the simplest terms that's exactly what I am) I am able to successfully run a business on my own!
There's lots more I want to say, but honestly I'm quite fuzzy tonight and can't get the words quite right. But what are your thoughts?
on 22-02-2017 12:57 AM
Just seen this - really sorry to hear what you're going through.
We are indeed a similar boat with the symptoms. I had vertigo too several years back (right as I was launching my first book!). It cleared after about 6 months and then roughly 2 years ago had what seemed like vertigo again, except it settled into stroke-like symptoms and 24/7 dizziness.
I think it's best to be genuine - it's never failed me yet. People really value honesty and it feels good to be able to be honest.
The only hurdle you face with this really is people not quite understanding what your illness is or entails, or making assumptions about it. That's why I just say I have a neurological disorder and list the symptoms if I need to. Believe me, most Drs have never heard of my diagnosis. I have Vestibular Migraine. But as soon as you mention migraine, many people think you mean you get horrible headaches now and then. That's really not what VM is.
So, I would say to share if it feels necessary to you, but say something like I do, so people don't get confused or make inaccurate assumptions. Tell people what you can do as well what you can't. (e.g. I tell contacts, I will always reply to your emails/calls, but it might take me a few days if I'm having a bad day with my illness).
Bravo to you for having a positive and proactive attitude
on 20-04-2017 03:33 PM
I think you're both doing an amazing job too - but thought you might be interested and could get a little extra motivation!